InterSystems, Pulse Infoframe partner to create 'patient registry in a box'

The joint goal is to facilitate collaborative clinical research and population health, the companies say.
By Bernie Monegain
11:25 AM

InterSystems has partnered with Canadian company Pulse Infoframe to make clinical research and population health studies easier.

Pulse Infoframe provides collaborative research and patient registry technology. Healthie, its clinical business intelligence platform, connects specialists from around the world.

By leveraging the InterSystems HealthShare informatics platform for interoperability between clinical systems and electronic health records, physicians and researchers can capture, organize, model, store and share information in the cloud service – a so-called “patient registry in a box,” according to the companies. 

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“The Pulse platform could really be a real game changer in medicine, not only to facilitate collaborative research among clinicians and researchers, but to educate patients and maintain productive communications with them after treatment,” said Joe DeSantis, vice president of HealthShare Platforms at Intersystems.

Pulse Infoframe created the first North American melanoma registry, now deployed in 12 leading cancer centers and growing. Today the Pulse platform is used by healthcare organizations worldwide to measure, value and improve patient outcomes for 24 diseases, including cancer, diabetes and heart disease.

“We realized that even though we introduced new melanoma treatments, we were not always sure how we were impacting patient outcomes,” Scott Ernst, who heads medical oncology at the London, Ontario, Health Science Centre, said in a statement. “Using Healthie, we can now track patients not just at our center, but all over the country, to answer that most basic of questions, ‘How are patients doing?’”

Femida Gwadry-Sridhar, CEO and founder of Pulse Infoframe, said the goal is to transform the clinician from a siloed specialist to member of a community of thought leaders empowered with relevant data and advanced patient care.

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“We call the data we capture ‘little data,’” said Gwadry-Sridharin, adding that it is just the right data that is relevant and actionable.

Pulse is also working Jefferson University Hospital on a digital health program to improve population health outcomes for more than 100,000 labor union members in Philadelphia. As a no-cost benefit, union members received a phone app that would identify potential risk for cardiovascular disease. The de-identified data could be accessed for population health studies by clinicians, and the union members who were identified as high risk could contact a physician for a follow-up.

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