NIH precision medicine project to explore enrollment of kids
The National Institutes of Health's precision medicine cohort program will seek new strategies to responsibly engage more children with the potentially decades-long study.
The NIH All of Us Research Program, helmed by former Intel fellow Eric Dishman, has established the Child Enrollment Scientific Vision Working Group, an advisory panel meant to explore and define the "scientific goals that should be broadly enabled through the enrollment of children from diverse backgrounds into the All of Us Research Program."
It will prepare a report outlining the short-, medium- and long-term research outcomes the program should consider enabling through its enrollment of children under the age of 18.
Those findings will inform the subsequent work of a Child Enrollment Working Group, charged with examining the practical considerations of child enrollment and data collection involving children, officials said.
The CESVWG comprises experts from a variety of stakeholder groups. They are:
- Deanna Barch, Washington University in St. Louis
- Carol Blaisdell, MD, Environmental influences on Child Health Outcomes (ECHO) Program, National Institutes of Health
- Clifford Bogue, MD, Yale-New Haven Children’s Hospital
- Tina Cheng, MD, Johns Hopkins University School of Medicine and Johns Hopkins Hospital;
- Rebecca Fry, University of North Carolina at Chapel Hill
- Holly Garriock, All of Us Research Program, National Institutes of Health
- Christine Johnson, Henry Ford Health System and the Trans-American Consortium for the Health Care Systems Research Network (TACH)
- Valerie Maholmes, Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health
- Marie Lynn Miranda, Rice University
- Andreas Theodorou, MD, Banner Health and the University of Arizona
- David Williams, MD, Dana-Farber/Boston Children’s Cancer and Blood Disorders Center